Collaborating Institutions

The University of Utah School of Medicine
Department of Internal Medicine
Nephrology and Hypertension Division
Salt Lake City, Utah

Peking University First Hospital
Beijing, P R China

Department of Nephrology and Rheumatology
University of Göttingen
Göttingen, Germany

Alport Syndrome Registry in Germany
http://www.alport.de
University of Göttingen
Göttingen, Germany

University of Toronto
The Hospital for Sick Children Division of Nephrology
Toronto, Canada

Centre de Référence des Maladies Rénales Héréditaires de l'Enfant et de
l'Adulte (MARHEA) Service de Néphrologie Pédiatrique, Clinique Maurice
Lamy Hôpital Necker-Enfants Malades


Alport Syndrome Research Collaborative

The Alport Syndrome Treatments and Outcomes Research Collaborative (ARC) brings together physicians and researchers knowledgeable in the study and treatment of Alport syndrome for the purpose of designing clinical trials in children and adolescents with the disease. Members include:

Clifford Kashtan, MD
ASTOR Executive Director and Principal Investigator
Division Director and Professor of Pediatrics
Division of Pediatric Nephrology
University of Minnesota
Minneapolis, MN

Martin C. Gregory, MD, PhD
Professor of Medicine
The University of Utah School of Medicine
Department of Internal Medicine
Nephrology and Hypertension Division
Salt Lake City, Utah

Jie Ding, M.D., Ph.D.
Professor of Pediatric Department
Peking University First Hospital
Beijing, P R China

Oliver Gross, PD, MD, FASN
Department of Nephrology and Rheumatology
University of Göttingen
Göttingen, Germany

Christoph Licht, MD
Assistant Professor of Pediatrics
University of Toronto
Staff Nephrologist and Associate Scientist
The Hospital for Sick Children Division of Nephrology
Toronto, Canada

Michelle Rheault, MD
Assistant Professor of Pediatrics
University of Minnesota
Minneapolis, MN

Laurence Heidet, MD
Centre de Référence des Maladies Rénales Héréditaires de l'Enfant et de
l'Adulte (MARHEA) Service de Néphrologie Pédiatrique, Clinique Maurice
Lamy Hôpital Necker-Enfants Malades

Bertrand Knebelmann, MD
Centre de Référence des Maladies Rénales Héréditaires de l'Enfant et de
l'Adulte (MARHEA) Service de Néphrologie Pédiatrique, Clinique Maurice
Lamy Hôpital Necker-Enfants Malades

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