The Alport Syndrome Foundation

The ASF VISION is to make Alport Syndrome a treatable disease and ultimately find a cure.

The ASF MISSION is to improve the lives of those affected by Alport Syndrome through education, empowerment, advocacy, and funding research.

·         ASF is focused on realizing this Vision, and has directed the majority of the Foundation‘s resources to medical research.

·         ASF raises awareness in the patient and medical community and is fostering collaboration among Alport Syndrome stakeholders all over the world — including alliances with international patient support groups, patient registries, and medical researchers.

·         ASF empowers the Alport Syndrome community by centralizing medical information, hosting patient meetings and conferences, and providing education, advocacy, communication and a network of support.


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