The Alport Syndrome Foundation
The ASF VISION is to make Alport Syndrome a treatable disease and ultimately find a cure.
The ASF MISSION is to improve the lives of those affected by Alport Syndrome through education, empowerment, advocacy, and funding research.
· ASF is focused on realizing this Vision, and has directed the majority of the Foundation‘s resources to medical research.
· ASF raises awareness in the patient and medical community and is fostering collaboration among Alport Syndrome stakeholders all over the world — including alliances with international patient support groups, patient registries, and medical researchers.
· ASF empowers the Alport Syndrome community by centralizing medical information, hosting patient meetings and conferences, and providing education, advocacy, communication and a network of support.