What the Registry Provides
ASTOR provides an opportunity for people with Alport syndrome to participate in research aimed at finding effective treatments for the disease. ASTOR also provides current information on Alport syndrome and its treatment to patients, families and physicians.
ASTOR staff will answer general inquiries from patients and family members regarding Alport syndrome. Patients and families will be directed back to their local treating physicians for all decision making. Treating physicians are in the best position to determine appropriate care for individual patients.